When a parent is handed a lifelong diagnosis for their young child, such as type 1 diabetes, a long grieving process begins. It's incredibly hard to accept the new direction your lives will now take -- individually, and together. If you've never been through something like this, it's hard to understand, but you immediately … Continue reading Acceptance. Finally, or Maybe Just for Now.
One year ago -- June 9, 2016 -- a new family member came unexpectedly crashing into our lives. This new family member demanded 24-hour attention, a new education, personal growth, dietary changes, a lot of money, and a huge amount of patience. Its name is T1D. We didn't welcome type 1 diabetes into our lives, … Continue reading One Year In: Our First “Diaversary”
I know that from most of my blog posts, it might seem like our world over here at the Alexander household is a lot of doom and gloom. I just want to tell you that it absolutely is NOT. Sure, we have our fair share of hard days (or maybe more like hard hours as I … Continue reading Thank You, Diabetes: Finding Gratitude in the Face of Chronic Illness
This topic gets me pretty fired up. I'll be the first to admit that the Affordable Care Act is confusing and not perfect. Fortunately, I've never had to purchase insurance through the ACA marketplace, but I've liked knowing it's there -- even before my child was diagnosed with type 1 diabetes. I liked it even before … Continue reading The ACA and Diabetes
I have learned A LOT about how to approach people who are going through a hard time since Lily's diagnosis. The most obvious thing I've learned is how I've been doing it all wrong. Say your friend's mom recently died, or someone you sort of know has a kid who has been diagnosed with cancer … Continue reading Say SOMETHING. Or, Maybe, Don’t: What to Say to Someone Who Has Been Dealt a Blow
As I scroll through the thousands (yes, thousands) of photos of Lily on my phone, I automatically categorize them in my brain as "before diabetes" and "after diabetes." I often stare at the images taken in the weeks before her diagnosis like a detective looking for clues. I remember during the months before her diagnosis … Continue reading Life Before and After Diabetes
I recently read a lovely poem titled, “Nobody saw you,” written by a mother about all the endless tasks, responsibilities, heartaches, and joys a mother goes through raising her small children. It made me cry because I could relate to it, and it also made me think of all the parents taking care of young … Continue reading Nobody Saw You
It all clicks in the middle of a Wednesday night. I awake and look at our baby monitor and notice that Lily's gray sleep sack looks darker on the bottom half, like it's maybe wet? I go into her room and her entire crib is soaked - her sheets, her sleep sack, her skin. Drenched. My mind races back … Continue reading T1D D-Day